Caleb came off the respirator Saturday evening. He is now on the high-flow nasal cannula.
He has had a couple of really good days.
His physical therapist is making him new hand splints. He has outgrown his old ones. (He has splints because he keeps his hands in fists so much. They want the ligaments in his hands to stretch, so he wears the hands splints a few hours everyday.)
He is scheduled to have a neurological consult sometime soon. They have not needed to tap his head (to remove the extra fluid caused by his brain bleeds and hydrocephalus) since February 9. The consult is to decide if it is time to remove the device they have in his head to drain the fluid.
He should start back on oral feeds soon.
Many people have asked how they can help. One way to help it is NOT ask when Caleb is coming home. The first time some one asks me that everyday it's ok. But, by the 5th time I'm asked that everyday it's not good. It just rubs in the fact that he is not home and if makes me feel like I'm a very bad mom because my baby is not home. I know people "mean well." But please DO NOT ASK! You will know when he comes home. I have no idea when he will be home and asking me the same question over and over again just upsets me - even if you do mean well.